Saturday, November 21, 2015

Catherine Jayasuriya: Raising awareness for Duchenne muscular dystrophy

Dusty’s Trail, Summit of Borneo is a documentary which tells the story a mother’s fight to raise awareness for Duchenne muscular dystrophy, a little-known degenerative condition that affects her son, Dusty. On BBC Radio 5 Live with Rhod Sharp I spoke to Catherine Jayasuriya and Dr Eduardo Marb├ín, founding director of the Cedars-Sinai Heart Institute about Dusty and the latest research into the disease.

More information on Dusty's Trail here:

Wednesday, November 18, 2015

Haben Girma, deaf-blind disability rights advocate

Haben Girma and Peter Bowes (Photo: Tim Myers)
Haben Girma, a deaf blind disability rights advocate, has a powerful message about access to education and technology for the disabled.

Haben uses a digital Braille system to communicate and was the first deaf blind student to graduate from Harvard Law School.

We met at her office in Berkeley, California, for an interview, as part of the BBC's Women of Africa series. Full story.